Our Open Letter features in Private Eye
In the latest edition (1507 – 18-31 October 2019) of Private Eye magazine, the Medicine Balls column written by M.D. (also known as Dr Phil Hammond) has featured our open letter to Michael Gove and Matt Hancock the Secretary of State for Health and Social Care. A sincere thanks to Dr. Hammond for taking the time to meet and listen to our #RareDisease worries. Read the full column here.
Warm Home Discount
The Warm Home Discount Scheme is an initiative from the government that helps low-income and vulnerable households with a discount on their electricity bills over the winter. Apply now.
It is worth £140 to people with low incomes. Contact your energy company as soon as possible to see if you qualify.. Eligibility criteria and energy companies taking part listed in the post.
Secretary of State for Health replies to our Open Letter
The UK’s Secretary of State for Health and Social Care has taken note of our open letter published on our website on 20th September 2019 asking for continued access to European Reference Networks (ERNs) and to be included in Article 50 negotiations. Today we received a reply from Matt Hancock.
